This Privacy Policy Statement applies to all websites, applications and gSaaSTM API outputs owned and operated by LifeNome, Inc. (“LifeNome”). LifeNome is headquartered at 1460 Broadway, New York, NY 10036 and is referred to herein as LifeNome (or “we,” “us,” “our”) and includes all of our commonly owned companies.
Our Privacy Policy Statement is designed to help you better understand how we collect, use, store, process, and transfer user information or that of your users when using our websites, applications, gSaaSTM API outputs, products, software and other services (collectively “products and services” or “services”). Please carefully review this Privacy Policy Statement and our Terms of Service. By using our products and services, you acknowledge and accept all of the policies and procedures described in the foregoing documents. If you do not agree with or you are not comfortable with any aspect of this Privacy Policy Statement or our Terms of Service, you should immediately discontinue use of our products and services. This Privacy Policy Statement is effective as of the date above and is subject to change at our discretion.
We have appointed a data protection officer (DPO) who is responsible for overseeing questions in relation to this Privacy Policy Statement. If you have any questions about this Privacy Policy Statement, including any requests to exercise your legal rights, please contact the DPO using the details set out below.
By email: dataprivacy@lifenome.com
By mail:
Data Protection Officer
LifeNome, Inc.
1441 Broadway Suite 3112
New York, NY 10018
United States of America
The following are our core privacy principles:
Personal data, or Personal Information means any information about an individual from which that person can be identified. It does not include data where the identity has been removed (anonymous data).
We may collect, and have collected for the period of 12 months prior to the date of this Privacy Policy different kinds of Personal Information about a user which we have grouped together as follows:
Information provided directly to us or through a third-party company to which the user has given consent to share information with us
Registration Information: When users or third parties register an account on behalf of the user with us or purchase our products and services, we collect personal information, such as name, billing address, payment information (e.g., credit card) and contact information such as email addresses.
Digital Genetic Data: To use our products and services, users or representative third parties must upload their digital genetic data (features of the DNA that distinguish the user from other people (e.g. the As, Ts, Cs, and Gs at particular locations in the genome) to our websites and applications or provide consent to a third-party company to share their Identity Data and Genetic Data with us by using our gSaaSTM API. If users have not already procured their digital genetic data through the analysis of a sample of their DNA, they must purchase, or receive as a gift, a DNA test kit, register an online account with the third party offering such service, and provide their genetic sample to the third-party to receive a digital copy of their raw DNA data and provide that data to the LifeNome platform. LifeNome is not responsible for the accuracy of the raw data analysis, nor the secure processing of genetic data by third parties. LifeNome only uses the raw data produced by the third party (based on the DNA sample) for generating its wellness websites, applications, and gSaaSTM API outputs.
Information collected through tracking technology (e.g. from cookies and similar technologies)
Web Behavior Information: We may use cookies and similar technologies (such as web beacons, tags, scripts, and device identifiers) to help us improve user experience, provide security, analyze usage of our products and services (such as to analyze interactions with the results, reports, and other features of the products and services), gather demographic information about our user base, to offer services, to monitor the success of marketing programs sites around the Internet. We respond to Do Not Track signals. If users reject cookies, they may still use our site, but the ability to use some features or areas of our site may be limited.
We may receive reports based on the use of these technologies from third-party service providers on a de-identified, individual-level, or aggregated basis. We and our third-party service providers do not use a user’s Sensitive Information, such as Genetic Information for targeted advertising. Third-party service providers, such as Google Analytics, may collect, store, and share information as further dictated by the privacy policies and disclosures of those third parties.
Google Analytics: Google Analytics is used to perform many of the tasks listed above. We use the User-ID feature of Google Analytics to combine behavioral information across devices and sessions (including authenticated and unauthenticated sessions). We have enabled the following Google Analytics Advertising features: Google Analytics Demographics and Interest Reporting. We do not merge information collected through any Google advertising product with individual-level information collected elsewhere by our service. Learn more about how Google collects and uses data here. To opt out of Google Analytics Advertising Features please use Google Ad Settings. To opt out of Google Analytics entirely users can use this link. Google, Inc. may utilize the data collected to track and examine the use of our websites and applications, to prepare reports on its activities and share them with other Google, Inc. services. Google, Inc. may also use the data collected to contextualize and personalize the ads of its own advertising network. Users may view Google’s privacy policy here: http://www.google.com/intl/en/policies/privacy/, with more information located here: http://www.google.com/policies/privacy/partners/ (including information regarding how to control how information is shared through Ads Settings) and here: https://support.google.com/analytics/answer/6004245?hl=en. Users may opt out of Google Analytics data as instructed here: https://tools.google.com/dlpage/gaoptout/. Users can opt out of or modify the settings related to what Google collects through its DoubleClick cookie by visiting the following websites: https://www.google.com/settings/ads/plugin?hl=en andhttps://www.google.com/settings/ads/anonymous?hl=en.
Other Types of Information: We are always working to enhance our products and service with new applications and features that may result in the collection of new and different types of information. We will update our Privacy Policy Statement and/or obtain consent prior to new processing, as needed.
LifeNome will use and share users’ personal information with third parties only in the ways that are described in this Privacy Policy Statement. We will only use personal data when the law allows us to. Most commonly, we will use personal data in the following circumstances:
To provide users with products and services and analyze and improve our products and services
We use the information described above in Section 3 to operate, provide, analyze and improve our products and services. These activities may include, among other things, using user’s information in a manner consistent with other commitments in this Privacy Policy Statement, to:
We process users’ Personal Information in this way to provide our products and services to the user in accordance with our Terms of Service. Our legal basis for processing users’ information is to perform our contract with them or a third-party to which users have given consent, and our legitimate interests (to deliver and improve our products and services).
To process, analyze and deliver user’s results and reports
As described above, to receive results and reports, users must create an account and upload user digital Genetic Data or consent to a third party to provide user Identity and Genetic Data by using gSaaSTM API. Once we receive user data, we further analyze it to provide users or third party with our outputs. LifeNome continuously works to improve our products and services based on our research and product-service development, and genetic associations identified in scientific literature. If we are able to offer additional via websites, applications, gSaaSTM API outputs, or otherwise improve in the future, users will be notified of these changes.
We process user’s Personal Information in this way is to provide our products and services to users in accordance with our Terms of Serivce.
Our legal basis for processing user Personal Information for the purposes described above is based on user’s consent and to perform our contract with users or a third-party to which users have given consent. Users may withdraw their consent at any time, however, the withdrawal of user consent will not affect the lawfulness of processing based on consent before its withdrawal.
To allow users to share their Personal Information for LifeNome Research purposes
Users have the choice to participate in LifeNome research by providing your consent. “LifeNome Research” refers to research aimed at publication in peer-reviewed journals and other research, including that funded by the federal government (such as the National Institutes of Health – NIH) conducted by LifeNome. LifeNome Research may be sponsored by, conducted on behalf of, or in collaboration with third-parties, such as non-profit foundations, academic institutions or pharmaceutical companies. LifeNome Research may study a specific group or population, identify potential areas or targets for therapeutics development, conduct or support the development of drugs, diagnostics or devices to diagnose, predict or treat medical or other health conditions, work with public, private and/or non-profit entities on genetic research initiatives, or otherwise create, commercialize, and apply this new knowledge to improve health care. LifeNome Research uses users’ aggregated or individual-level genetic information and self-reported information as specified in the consent document, as explained in greater detail below.
Consent process for research: Users’ genetic and self-reported information may be used for LifeNome Research only if users have consented to this use by completing a consent document. If users have completed a consent document:
Withdrawing User Consent: Users may withdraw your consent to participate in research at any time by emailing research@lifenome.com.
LifeNome will not include users’ genetic information or self-reported information in new research occurring after 30 days from the receipt of a user request. Any research involving user data that has already been performed or published prior to our receipt of user request will not be reversed, undone, or withdrawn. If users withdraw their consent for research users’ genetic information and self-reported information may still be used by us and shared with our third-party service providers to provide and improve our products and services and shared as aggregate information that does not identify users as an individual.
Our legal basis for processing user’s Sensitive Information for the purpose described above is based on user consent. Users may withdraw their consent at any time, however, the withdrawal of user consent will not affect the lawfulness of processing based on consent before its withdrawal. If users do not complete a consent document with LifeNome, their identifiable, individual-level personal information will not be used for LifeNome Research.
To recruit users for external research
Academic institutions, healthcare organizations, and other groups are always conducting interesting new research projects. We want to make users aware of these opportunities. While we do not share individual-level genetic information or self-reported information with third-parties without user consent, from time to time we may inform a user of third-party research opportunities for which users may be eligible. For example, if a university tells us about a new cancer research project, we may send an email to LifeNome members who potentially fit the relevant eligibility criteria based on their self-reported information to make them aware of the research project and provide a link to participate with the research organization conducting the study. We will not share Individual-level Genetic Information or Self-Reported Information with any third party without user consent. Also, if user does not wish to receive these alerts, users can request to no longer receive notifications by emailing research@lifenome.com.
Our legal basis for processing user’s Sensitive Information for the purpose described above is based on user consent. Users may withdraw their consent at any time, however, the withdrawal of their consent will not affect the lawfulness of processing based on consent before its withdrawal.
To provide users with customer support
When users contact Customer Support, we may use or request Personal Information and/or Sensitive Information as necessary to answer user questions, resolve disputes, or troubleshoot problems. Our legal basis for processing Personal Information for the purposes described above depends on the nature of the customer support request. Our legal basis can be based on consent, to satisfy our contractual or legal obligations and/or based on our legitimate interest to improve our Services.
Our legal basis for processing user Personal Information for the purpose described above is based on our legitimate interest to develop our business.
Third-Party Intermediaries
When users order our Services through a third-party company and provide them consent to share user Personal Information (including Genetic Data and other Sensitive Information) with us, we share user’s results with the third-party so they can deliver their products to the user.
General Service Providers
We share the information described above with our third-party service providers, as necessary to provide their services to us and help us provide our service to the user. Service providers are third-parties (other companies or individuals) that help us to provide, analyze and improve our Services. For example, we may order DNA kits from GenebyGene (FamilyTreeDNA) or other lab partners for purposes of them generating user genetic information.
Aggregate Information
We may share de-identified, aggregate information, which is information that has been stripped of username and contact information and combined with information of others so that users cannot reasonably be identified as an individual, with third-parties. This information is different from “individual-level” information and is not personal information because it does not identify any particular individual or disclose any particular individual’s data. For example, aggregate information may include a statement that “20% of our male users share a particular genetic trait,” without providing any data or testing results specific to any individual user. In contrast, Individual-level Genetic Information or Self-Reported Information consists of data about a single individual’s genotypes, diseases or other traits/characteristics information and could reveal whether a specific user has a particular genetic trait or consist of all of the Genetic Information about that user. LifeNome will ask for users’ consent to share Individual-level Genetic Information or Self-Reported Information with any third party, other than our service providers as necessary for us to provide the Services to users.
Information We Share With Commonly Owned Entities
We may share some or all of user’s personal information with other companies under common ownership or control of LifeNome, which may include our subsidiaries, in order to provide a user with better products and services and improve the user experience. We may provide additional notice and ask for users’ prior consent if we wish to share Personal Information with our commonly owned entities in a materially different way than discussed in this Privacy Policy Statement.
Disclosures Required By Law
Under certain circumstances, personal information may be subject to disclosure pursuant to laws, regulations, judicial or other government subpoenas, warrants, or orders. For example, we may be required to disclose personal information in coordination with regulatory authorities in response to lawful requests by public authorities, including to meet national security or law enforcement requirements. LifeNome will preserve and disclose any and all information to law enforcement agencies or others if required to do so by law or in the good faith belief that such preservation or disclosure is reasonably necessary to (A) comply with legal or regulatory process (such as a judicial proceeding, court order, or government inquiry) or obligations that LifeNome may owe pursuant to ethical and other professional rules, laws, and regulations; (B) enforce the LifeNome Terms of Use and other policies; (B) respond to claims that any content violates the rights of third-parties; or (D) protect the rights, property, or personal safety of LifeNome, its employees, its users, its clients, and the public.
NOTE: If users are participating in LifeNome Research, LifeNome will withhold disclosure of user personal information involved in such research in response to judicial or other government subpoenas, warrants or orders in accordance with any applicable Certificate of Confidentiality that LifeNome has obtained from the National Institutes of Health (NIH). There are limits to what the Certificate of Confidentiality covers so please visit the Certificates of Confidentiality Kiosk (http://grants.nih.gov/grants/policy/coc/index.htm).
Access to own account
At LifeNome, users control their data and profile and can access, correct, delete, or update their data and profile at any time. Users may also modify and delete their entire user account and profile, which will erase their raw genetic data from our databases.
Please note that users may not be able to delete user content that has been shared with others through the products and services and that users may not be able to delete information that has been shared with third-parties. Users can request access to all of the user’s personally identifiable information, and ask questions about our privacy practices by sending an email to LifeNome’s Privacy Administrator at info@lifenome.com, or send a letter to:
Privacy Administrator
LifeNome, Inc.
1441 Broadway Suite 3112
New York, NY 10018
United States of America
Information users choose to share with others
In general, Personal Information once shared or disclosed, can be difficult to contain or retrieve. LifeNome will have no responsibility or liability for any consequences that may result because users have released or shared Personal Information with others. Likewise, if user have access to the Personal Information of a LifeNome customer through a multi-profile account, we urge them to recognize your responsibility to protect the privacy of each person within that account. Users with multi-profile accounts (e.g., where family member accounts are linked) should use caution in setting profile-level privacy settings.
Account closure
If users no longer wish to participate in our Services or no longer wish to have their personal information be used, users may delete their profile and or email customer care at info@lifenome.com. This will erase user raw genetic data from LifeNome’s databases. LifeNome will not thereafter share any personally identifiable genetic information with any third-party entities. LifeNome may use user genotype and phenotype data as part of an aggregate and anonymous research analysis to improve its genomics algorithm.
Your California privacy rights
If you are a California resident, California law provides you with the following rights with respect to your Personal Information, subject to certain exceptions:
The right to know what Personal Information we have collected, used, disclosed, and sold about you. To submit a request to know, send an email to LifeNome’s Privacy Administrator at info@lifenome.com, or send a letter to:
Privacy Administrator
LifeNome, Inc.
1441 Broadway Suite 3112
New York, NY 10018
United States of America
You also may designate an authorized agent to make a request for access on your behalf.
The right to request that we delete any Personal Information we have collected about you. To submit a request for deletion, send an email to LifeNome’s Privacy Administrator at info@lifenome.com, or send a letter to:
Privacy Administrator
LifeNome, Inc.
1441 Broadway Suite 3112
New York, NY 10018
United States of America
You also may designate an authorized agent to make a request for deletion on your behalf.
Your exercise of these rights will have no adverse effect on the price and quality of our goods or services.
For the 12-month period prior to the date of this Privacy Policy, LifeNome has not sold any personal information about its clients; nor does it have any plans to do so in the future.
Data Security
LifeNome takes the security of data seriously. We use state of the art security measures and encryption technologies to safeguard user’s personal information. Users will be responsible for safeguarding login information and should not share authentication information with any third party. Please notify us of any unauthorized use of user password. LifeNome cannot secure personal information that users release on their own or that users request us to release.
Users’ Responsibility
Users should recognize that protecting user Personal Information is also their responsibility. We ask users to be responsible for safeguarding their password, and other authentication information they use to access our products and services. Users should not disclose their authentication information to any third party and should immediately notify us of any unauthorized use of their password. We cannot secure Personal Information that users release on their own or that users request us to release.
User information collected through the products and services may be stored and processed in the United States of America or any other country in which LifeNome or its subsidiaries, affiliates or service providers maintain facilities and, therefore, user information may be subject to the laws of those other jurisdictions which may be different from the laws of user’s country of residence.
International Transfers
User data is stored in Google Clouds. We cannot control whether the cloud will be in a European Economic Area (EEA) territory or not and therefore whether data will be transferred out of the EEA or any other jurisdiction.
Business transactions
In the event that LifeNome goes through a business transition such as a merger, acquisition by another company, or sale of all or a portion of its assets, user information will likely be among the assets transferred. In such a case, user information would remain subject to the promises made in any pre-existing Privacy Policy Statement.
Children’s Privacy
LifeNome is committed to protecting the privacy of children as well as adults. Neither LifeNome nor any of its Services are designed for, intended to attract, or directed toward children under the age of 18. A parent or guardian, however, may collect a DNA sample from, create an account for, and provide information related to, his or her child. The parent or guardian assumes full responsibility for ensuring that the information that he/she provides to LifeNome about his or her child is kept secure and that the information submitted is accurate.
Changes to this Privacy Policy Statement
Whenever this Privacy Policy Statement is changed in a material way, all customers will receive an email with notification of the changes prior to the change becoming effective. LifeNome may provide additional “just-in-time” disclosures or additional information about the data collection, use and sharing practices of specific products and services. These notices may supplement or clarify LifeNome’s privacy practices or may provide you with additional choices about how LifeNome processes your Personal Information.
Third-Party Links
This website’s, application or gSaaSTM API outputs may include links to third-party websites, plug-ins, and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about users. We do not control these third-party websites and are not responsible for their privacy statements. When users leave our website, we encourage them to read the privacy notice of every website they visit.
Users have the right to:
No Fee Usually Required
Users will not have to pay a fee to access their personal data (or to exercise any of the other rights). However, we may charge a reasonable fee if the request is clearly unfounded, repetitive or excessive. Alternatively, we may refuse to comply with user requests in these circumstances.
What We May Need From Users
We may need to request specific information from users to help us confirm user identity and ensure their right to access their personal data (or to exercise any of the user’s other rights). This is a security measure to ensure that personal data is not disclosed to any person who has no right to receive it. We may also contact the user to ask you for further information in relation to their request to speed up our response.
Time Limit to Respond
We try to respond to all legitimate requests within one month. Occasionally it may take us longer than a month if the request is particularly complex or users have made a number of requests. In this case, we will notify users and keep them updated.
Complaints
If users believe that we have infringed on their rights, we encourage them to contact us so that we can try to address their concerns or dispute informally. Please email LifeNome’s Privacy Administrator at info@lifenome.com, or send a letter to:
Privacy Administrator
LifeNome, Inc.
1441 Broadway Suite 3112
New York, NY 10018
United States of America
Users also have a right to lodge a complaint with the competent supervisory authority situated in a State of their habitual residence, place of work, or place of the alleged infringement.
Users from the EU can find the relevant supervisory authority name and contact details here:
https://ec.europa.eu/info/law/law-topic/data-protection/reform/what-are-data-protection-authorities-dpas_en.
Contact Information
If users have questions about this Privacy Policy Statement or wish to exercise any of their rights, please email LifeNome’s Privacy Administrator at info@lifenome.com, or send a letter to:
Privacy Administrator
LifeNome, Inc.
1441 Broadway Suite 3112
New York, NY 10018
United States of America